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PLAIN LANGUAGE SUMMARIES

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border_radius_top_right=”30px” border_radius_bottom_right=”30px” border_radius_bottom_left=”30px” background_color=”var(–awb-color3)” padding_top=”15px” padding_right=”15px” padding_bottom=”15px” padding_left=”15px” margin_top=”15px” last=”true” border_position=”all” first=”true” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky”]

Some of the functions of the PLAIN summaries work best on the desktop version. We are currently working on optimizing the mobile version.

[/fusion_text][/fusion_builder_column_inner][/fusion_builder_row_inner][fusion_widget_area name=”avada-custom-sidebar-plainsidebaroverivewpagealphabetical” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” margin_left=”15px” /][/fusion_builder_column][fusion_builder_column type=”3_4″ type=”3_4″ layout=”4_5″ align_self=”auto” content_layout=”column” align_content=”flex-start” valign_content=”flex-start” content_wrap=”wrap” center_content=”no” column_tag=”div” target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” order_medium=”0″ order_small=”1″ hover_type=”none” border_style=”solid” box_shadow=”no” box_shadow_blur=”0″ box_shadow_spread=”0″ background_type=”single” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ lazy_load=”none” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” sticky=”off” sticky_devices=”small-visibility,medium-visibility,large-visibility” absolute=”off” filter_type=”regular” filter_hover_element=”self” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ transform_type=”regular” transform_hover_element=”self” transform_scale_x=”1″ transform_scale_y=”1″ transform_translate_x=”0″ transform_translate_y=”0″ transform_rotate=”0″ transform_skew_x=”0″ transform_skew_y=”0″ transform_scale_x_hover=”1″ transform_scale_y_hover=”1″ transform_translate_x_hover=”0″ transform_translate_y_hover=”0″ transform_rotate_hover=”0″ transform_skew_x_hover=”0″ transform_skew_y_hover=”0″ transition_duration=”300″ transition_easing=”ease” scroll_motion_devices=”small-visibility,medium-visibility,large-visibility” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ last=”true” border_position=”all” first=”true” margin_top=”21px” margin_top_small=”-20px” padding_top=”0px” spacing_left_small=”%” spacing_right_small=”%” margin_bottom_small=”px” padding_top_small=”0px” padding_right_small=”0px” padding_bottom_small=”0px” padding_left_small=”0px” spacing_left=”2%” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” margin_top=”20px”]

Here you can find the PanCare [fusion_modal_text_link name=”plain” class=”” id=””]PLAIN language[/fusion_modal_text_link] summaries. The PLAIN summaries have information about late effects and recommendations for long-term follow-up care for survivors of childhood, adolescent, and young adult cancer (called survivors). These summaries contain information about health problems for survivors, as well as their non-specialist healthcare providers, relatives and friends.

[/fusion_text][fusion_modal title=”PLAIN language” size=”large” show_footer=”yes” name=”plain”]P = Person-centred
L = Lay-language
A = Accessible
I = International
N = Navigable[/fusion_modal][fusion_button target=”_self” color=”custom” linear_angle=”180″ stretch=”default” icon_position=”left” icon_divider=”no” hover_transition=”icon_slide” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” button_gradient_top_color=”var(–awb-color4)” button_gradient_bottom_color=”var(–awb-color4)” border_radius_top_left=”10px” border_radius_top_right=”10px” border_radius_bottom_right=”10px” border_radius_bottom_left=”10px” size=”xlarge” alignment=”center” dynamic_params=”e30=” link=”https://pancaresurfup.eu/find-my-plain-summaries/” button_gradient_top_color_hover=”var(–awb-color7)” button_gradient_bottom_color_hover=”var(–awb-color7)” margin_bottom=”50px” margin_top=”25px” icon=”fa-arrow-circle-right fas”]Go to Find My PLAIN Summaries[/fusion_button][fusion_builder_row_inner][fusion_builder_column_inner type=”1_1″ type=”1_1″ layout=”1_1″ align_self=”auto” content_layout=”column” align_content=”flex-start” valign_content=”flex-start” content_wrap=”wrap” center_content=”no” column_tag=”div” target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” order_medium=”0″ order_small=”0″ hover_type=”none” border_style=”solid” box_shadow=”no” box_shadow_blur=”0″ box_shadow_spread=”0″ background_type=”single” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ lazy_load=”none” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” sticky=”off” sticky_devices=”small-visibility,medium-visibility,large-visibility” absolute=”off” filter_type=”regular” filter_hover_element=”self” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ transform_type=”regular” transform_hover_element=”self” transform_scale_x=”1″ transform_scale_y=”1″ transform_translate_x=”0″ transform_translate_y=”0″ transform_rotate=”0″ transform_skew_x=”0″ transform_skew_y=”0″ transform_scale_x_hover=”1″ transform_scale_y_hover=”1″ transform_translate_x_hover=”0″ transform_translate_y_hover=”0″ transform_rotate_hover=”0″ transform_skew_x_hover=”0″ transform_skew_y_hover=”0″ transition_duration=”300″ transition_easing=”ease” scroll_motion_devices=”small-visibility,medium-visibility,large-visibility” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ border_radius_top_left=”30px” border_radius_top_right=”30px” border_radius_bottom_right=”30px” border_radius_bottom_left=”30px” background_color=”var(–awb-color3)” padding_top=”15px” padding_right=”15px” padding_bottom=”15px” padding_left=”15px” margin_top=”15px” last=”true” border_position=”all” first=”true” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky”]

What are the PLAIN summaries?

The PLAIN summaries contain information about late effects and recommendations for long-term follow-up care in [fusion_modal_text_link name=”plain” class=”” id=””]PLAIN language[/fusion_modal_text_link]. Each [fusion_modal_text_link name=”plain” class=”” id=””]PLAIN language[/fusion_modal_text_link] summary contains a section describing:

The late effect
Who is at higher risk of that particular late effect
Which symptoms and signs you may need to look out for
Which tests you should have and when
What happens if you develop that particular late effect
What else you can do

The PLAIN summaries were developed by the [fusion_modal_text_link name=”multidisciplinary” class=”” id=””]multidisciplinary[/fusion_modal_text_link] PanCare PLAIN information group. For most of the late effects that can occur after childhood cancer and cancer treatment, there is a PLAIN summary.

[/fusion_text][fusion_modal size=”large” show_footer=”yes” name=”multidisciplinary” title=”Multidisciplinary”]This group consists of health-care professionals, professional CAYA cancer survivor representatives, guideline experts, science communication experts and PanCareFollowUp partner representatives.[/fusion_modal][/fusion_builder_column_inner][/fusion_builder_row_inner][fusion_builder_row_inner][fusion_builder_column_inner type=”1_1″ type=”1_1″ layout=”1_1″ align_self=”auto” content_layout=”column” align_content=”flex-start” valign_content=”flex-start” content_wrap=”wrap” center_content=”no” column_tag=”div” target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” order_medium=”0″ order_small=”0″ hover_type=”none” border_style=”solid” box_shadow=”no” box_shadow_blur=”0″ box_shadow_spread=”0″ background_type=”single” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ lazy_load=”none” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” sticky=”off” sticky_devices=”small-visibility,medium-visibility,large-visibility” absolute=”off” filter_type=”regular” filter_hover_element=”self” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ transform_type=”regular” transform_hover_element=”self” transform_scale_x=”1″ transform_scale_y=”1″ transform_translate_x=”0″ transform_translate_y=”0″ transform_rotate=”0″ transform_skew_x=”0″ transform_skew_y=”0″ transform_scale_x_hover=”1″ transform_scale_y_hover=”1″ transform_translate_x_hover=”0″ transform_translate_y_hover=”0″ transform_rotate_hover=”0″ transform_skew_x_hover=”0″ transform_skew_y_hover=”0″ transition_duration=”300″ transition_easing=”ease” scroll_motion_devices=”small-visibility,medium-visibility,large-visibility” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ border_radius_top_left=”30px” border_radius_top_right=”30px” border_radius_bottom_right=”30px” border_radius_bottom_left=”30px” background_color=”var(–awb-color3)” padding_top=”15px” padding_right=”15px” padding_bottom=”15px” padding_left=”15px” margin_top=”15px” last=”true” border_position=”all” first=”true” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky”]

Which PLAIN summaries are relevant for me?

That depends on the type of cancer you had and the cancer treatment you received. You can use our PLAIN search page Find my PLAIN summaries to find the relevant PLAIN summaries for your individual situation. If you prefer to just browse this website instead, you can do so by using the menu bar on the left.

You can find out which treatments you received by looking at your treatment summary. If you do not have a treatment summary or if you have any questions, do contact your treating hospital. Click here, for the treatment summary template of the PanCareFollowUp Care Intervention Replication Manual .

If you have any further questions or if the information in the PLAIN summaries concern you, please contact your general practitioner or follow-up care specialist.

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What are late effects?

As you know, people diagnosed with cancer need cancer treatments to recover. Cancer treatments damage and kill cancer cells, but can also damage healthy cells. When healthy cells get damaged, this may increase the risk of developing health problems later in life. Future health problems caused by childhood cancer or cancer treatment are called late effects.

[/fusion_text][/fusion_builder_column_inner][/fusion_builder_row_inner][fusion_builder_row_inner][fusion_builder_column_inner type=”1_1″ type=”1_1″ layout=”1_1″ align_self=”center” content_layout=”column” align_content=”flex-start” valign_content=”flex-start” content_wrap=”wrap” center_content=”no” column_tag=”div” target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” order_medium=”0″ order_small=”0″ hover_type=”none” border_style=”solid” box_shadow=”no” box_shadow_blur=”0″ box_shadow_spread=”0″ background_type=”single” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ lazy_load=”none” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” sticky=”off” sticky_devices=”small-visibility,medium-visibility,large-visibility” absolute=”off” filter_type=”regular” filter_hover_element=”self” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ transform_type=”regular” transform_hover_element=”self” transform_scale_x=”1″ transform_scale_y=”1″ transform_translate_x=”0″ transform_translate_y=”0″ transform_rotate=”0″ transform_skew_x=”0″ transform_skew_y=”0″ transform_scale_x_hover=”1″ transform_scale_y_hover=”1″ transform_translate_x_hover=”0″ transform_translate_y_hover=”0″ transform_rotate_hover=”0″ transform_skew_x_hover=”0″ transform_skew_y_hover=”0″ transition_duration=”300″ transition_easing=”ease” scroll_motion_devices=”small-visibility,medium-visibility,large-visibility” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ border_radius_top_left=”30px” border_radius_top_right=”30px” border_radius_bottom_right=”30px” border_radius_bottom_left=”30px” background_color=”var(–awb-color3)” padding_top=”15px” padding_right=”15px” padding_bottom=”15px” padding_left=”15px” margin_top=”15px” last=”true” border_position=”all” first=”true” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky”]

What are the recommendations in the PLAIN summaries based on?

The PLAIN summaries are based on the PanCareFollowUp guidelines for late effects. These guidelines are based on the IGHG guidelines (International Group for Guideline Harmonisation for Late Effects of Childhood Cancer) and on the consensus (agreement) of different national guidelines.

At the end of each PLAIN summary, you can find a statement that specifies which guidelines the summary is based on.

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Info boxes

In the PLAIN summaries you can find so-called info boxes. These pop-up boxes provide additional information on terms or phrases used in the PLAIN summaries. You can access info boxes, wherever there is dark blue underlined text in the PLAIN summaries. Upon clicking on this text, a pop-up box with the additional information will show up, as shown in the figure below.

[/fusion_text][fusion_imageframe custom_aspect_ratio=”100″ lightbox=”no” linktarget=”_self” align_medium=”none” align_small=”none” align=”none” hover_type=”none” magnify_duration=”120″ scroll_height=”100″ scroll_speed=”1″ caption_style=”off” caption_align_medium=”none” caption_align_small=”none” caption_align=”none” caption_title_tag=”2″ animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ image_id=”10493|full” bordersize=”1″ bordercolor=”var(–awb-color6)” borderradius=”30px” margin_right=”20px” margin_left=”20px”]https://pancaresurfup.eu/wp-content/uploads/2024/08/Picture1-1.png[/fusion_imageframe][/fusion_builder_column_inner][fusion_builder_column_inner type=”1_1″ type=”1_1″ layout=”1_1″ align_self=”center” content_layout=”column” align_content=”flex-start” valign_content=”flex-start” content_wrap=”wrap” center_content=”no” column_tag=”div” target=”_self” hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky” order_medium=”0″ order_small=”0″ hover_type=”none” border_style=”solid” box_shadow=”no” box_shadow_blur=”0″ box_shadow_spread=”0″ background_type=”single” gradient_start_position=”0″ gradient_end_position=”100″ gradient_type=”linear” radial_direction=”center center” linear_angle=”180″ lazy_load=”none” background_position=”left top” background_repeat=”no-repeat” background_blend_mode=”none” sticky=”off” sticky_devices=”small-visibility,medium-visibility,large-visibility” absolute=”off” filter_type=”regular” filter_hover_element=”self” filter_hue=”0″ filter_saturation=”100″ filter_brightness=”100″ filter_contrast=”100″ filter_invert=”0″ filter_sepia=”0″ filter_opacity=”100″ filter_blur=”0″ filter_hue_hover=”0″ filter_saturation_hover=”100″ filter_brightness_hover=”100″ filter_contrast_hover=”100″ filter_invert_hover=”0″ filter_sepia_hover=”0″ filter_opacity_hover=”100″ filter_blur_hover=”0″ transform_type=”regular” transform_hover_element=”self” transform_scale_x=”1″ transform_scale_y=”1″ transform_translate_x=”0″ transform_translate_y=”0″ transform_rotate=”0″ transform_skew_x=”0″ transform_skew_y=”0″ transform_scale_x_hover=”1″ transform_scale_y_hover=”1″ transform_translate_x_hover=”0″ transform_translate_y_hover=”0″ transform_rotate_hover=”0″ transform_skew_x_hover=”0″ transform_skew_y_hover=”0″ transition_duration=”300″ transition_easing=”ease” scroll_motion_devices=”small-visibility,medium-visibility,large-visibility” animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ border_radius_top_left=”30px” border_radius_top_right=”30px” border_radius_bottom_right=”30px” border_radius_bottom_left=”30px” background_color=”var(–awb-color3)” padding_top=”15px” padding_right=”15px” padding_bottom=”15px” padding_left=”15px” margin_top=”15px” last=”true” border_position=”all” first=”true” min_height=”” link=””][fusion_text animation_direction=”left” animation_speed=”0.3″ animation_delay=”0″ hide_on_mobile=”small-visibility,medium-visibility,large-visibility” sticky_display=”normal,sticky”]

Translations

Are you interested in translating the PanCare PLAIN language summaries into your native language? We have developed the PanCare PLAIN Translation Manual to help and guide you to undertake the effort of translating the summaries. As you can see above, Italian and Hungarian are already available and we hope to add many more. Sign up below to receive the translation manual!

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Disclaimer

While the PanCare PLAIN information group strives to provide accurate and complete information that is up-to-date as of the date of publication, you can check with your general practitioner or follow-up care specialist if this summary reflects the most up-to-date information available and whether it is relevant for you.

Please do not rely solely on this information. It is best to also seek the advice of a qualified medical practitioner if you have questions regarding a specific medical condition, disease, diagnosis or symptom.

No warranty or representation, expressed or implied, is made concerning the accuracy, reliability, completeness, relevance, or timeliness of this information. PanCare has produced the English version and PanCare is not responsible for the translated versions of this summary.

The PanCare materials are free to use for anyone aiming to inform about late effects and long-term survivorship care. However, no financial advantage may be achieved. All communication should reference PanCare and link to the PanCare website.

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Contact

We are continuously trying to improve the PLAIN webpages. If you would like to report an issue, you can contact the PanCare PLAIN coordinator Tessa Fuchs at tessa.fuchs@pancare.eu

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PanCareFollowUp has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 824982. The material presented and views expressed here are the responsibility of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.

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EU-CAYAS-NET was co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them.

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